The pdf below describes more details about the study and who to contact if you are interrested. This is in Italian. I have the english translation right below.
Chiamata-per-pazienti-con-Atassia-di-Friedreich-IFN-gamma-3(1)
Here is the english translation:
This is the one and only picture I took in Rome two years ago. I was sitting outside the hotel waiting for Morten to organize the taxi to get to the University of Rome Tor Vergata where prof. Testi has his lab. This random cat just came stroking around my feet. So cute! (Until she bit me…)
I just showed this picture to Morten and he too remembers this picture so well. I was in a really bad state at that time and the year leading up to my first injection of Imukin. Two words to describe what I felt in this picture: sadness and sorrow… It brings tears to my eyes to see my face on this picture and remembering how this Gunnhild back in May 2013 felt inside. From the bottom of my heart I hope that all FA-ers gets to experience the relief I’ve had with Imukin.
Imukin might not work for everybody but new medication is right around the corner. If Imukin dosen’t work for you than something else will! I have great hope for the future ๐
Hello. My name is Marisa and I write from Italy. 12 year old grandson suffers from FA, we know for some three months. Probably will come in the experimentation of Gofar, which should leave early. We read with joy these comments, they are our hope and strength. I saw that are of 2015, we would like to know if you all continue to hire Imukin and especially as you are today. For our part, we will let you know when they start experimenting and with what effects. Thank you so much, I hope to have your news and hopefully soon we can find the right care! Thank you