When people ask me how I feel it starts getting hard to remember how I felt before i started taking IFG (Imukin). It’s getting hard to compare. I know for sure that I have much more energy. I was just recently in Miami, which has a time difference on 6 hours from Norway and it’s a 24 hour trip from door to door. That can be a challenge on everybodys energy. I felt fine the whole stay! I was a little disappointed about my walking though. It felt like a struggle, as usual.
Today I was thinking about how my balance was when I took the FARS scale before I started taking Imukin. I rember that I sucked on this one particular test. I fell over as soon as I let go of my support. As a person who aims to win all competitions I hate “loosing” on these tests. Well, I decided to try it again today to see if it had improved or not. My sister documented it on video, so here it is. Good right???!! Today, I won this test! 🙂
Wow Gunnhild, that’s awesome!
The two things I keep track of each week are standing with feet apart and eyes open on a foam mat (Balance Pad), and feet together eyes closed (my physio documents it as FTEC so I guess it’s something they track for many people). I have about a year’s data tracking those so I should be able to document if I improve.
I plan to ask my doctor and my cardio about going onto Interferon after your first interim measure – in December. My only concern is that the documentation said not to try it if you’ve any heart concerns. We’ll see what my cardio says.
Thanks for sharing this video, Gunnhild. And welcome back to Europe!
Its very good Gunnhild, I think your incredible!
Hello! I appear: my name is Marie Hélène, I am 42 years old and I have Friedrich’s ataxie. I would want to make as you. What do I have to make?